Santorums Share Daughter’s Miraculous Story in New Book

Every life matters.

That’s the message former Pennsylvania Sen. Rick Santorum and his wife, Karen, are sharing in their new book, “Bella’s Gift: How One Little Girl Transformed Our Family and Inspired a Nation.”SantorumBook

The Santorums’ youngest daughter, Bella, has Trisomy 18, a genetic disorder that is usually fatal. Bella has defied the odds, however. She is approaching her 7th birthday.

“(T)his book was really written for parents of kids with disabilities,” Karen Santorum told ABC News in a recent interview. “That’s why it’s so transparent. And — and it just — they inspire us. They’re amazing. You talk to each and every one of these parents, the message is that every person matters.”

Rick and Karen said they wrote chapters of the book separately, because they wanted to share both a father’s and mother’s perspective about the trials and joys of caring for a child with a disability.

The Santorums also discussed the pressure to abort that families often face when they learn about a preborn child’s diagnosis of a disability or fatal condition.

“(Bella’s) message is don’t look at her as a diagnosis,” Karen Santorum told ABC News. “Look at her and many other people like Bella, as a person. And don’t write them off just because of that diagnosis. Because, lethal language can lead to lethal outcomes.”

Bella Santorum’s life is an example of hope for many families facing a poor prenatal diagnosis. She is another beautiful example of why there’s always a reason to choose life!

Dancing with Disability

By Maria Gallagher, Legislative Director

When I worked in TV news, we would talk about creating a “moment,”–a point
in time played out on the television screen that was particularly memorable.

As I was watching a replay of ABC’s “Dancing with the Stars” this week, I
witnessed such a moment, or, more accurately, a series of amy-purdy-contemporarymind-blowing
moments, when the couple known as “Amy and Derek” danced.

The ABC website reports that contestant Amy Purdy lost her legs at the age
of 19 following a bout with meningitis. Undaunted, she became a three-time
World Cup Para-snowboard champion.

Her contemporary dance with professional partner Derek Hough began with baby
steps on her artificial legs and feet. At times, she gracefully fell to the
floor, to be picked up again by her partner. At one point, Derek twirls
her about so that she appears to be flying, and by the end of the dance, it
looks as if she is walking on air.

The song that accompanies the dance is “Human,” in which the singer notes,
“I can do it,” before admitting, “I’m only human/And I crash and break
down.”

At the dance’s end, the face of guest judge Robin Roberts of “Good Morning
America” reflects immense human emotion. The dance is a brilliant gem of an
example of the courage, fortitude, strength, heroism,and endurance that
people with disabilities evidence everyday.

It was a profound moment of accomplishment, and showed the miraculous feats
that can be achieved through hard work and perseverance–a moment of triumph
over trauma.

Share this video with your Facebook friends and Twitter followers. It is a
powerful argument against an attitude which says that a disability makes
life no longer worth living–or of no value from the start. The video is a
moment worth living again and again.

Click here to view the video.